Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Judy Ashley
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
To know me is to know my family and PKD: how PKD defines my family, but
does not hold us back. I am a second generation PKD patient. My
mom died 27 years ago at the age of 62 due to complications from dialysis. I knew myself and four siblings had PKD, but the effects of this horrible disease always seemed to be out in the distance for us all. I look back over the years and see how my family has been blessed again and again with kidney transplants. What have we all learned with having PKD?
Be your own advocate! My family continues to have hope for the future that there will be a cure for PKD and our children and grandchildren will not be challenged by this disease. In the meantime, we will fight for a cure. #endpkd #donatelife To all the donors out there, thank you for giving us something so precious. We won’t let you down!
Michelle Hoffmann
Walk Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I walk in support of my husband who has PKD. He received a living donor kidney from his sister in 2015 — on the same day his dad died 50 years earlier of PKD. I am committed to help raise funds to find a cure for PKD.
Page last updated February 2024
