Welcome to the

National Capital

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Get Involved

Are you interested in helping us grow the National Capital Community?

We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved. 

If you have questions, please email us at volunteers@pkdcure.org

The 2022 Walk for PKD launches in May. Watch the Walk for PKD webpage for more updates. We look forward to you joining us for an exciting year of fundraising to support PKD research. A cure is our finish line!

The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.

Virtual and free to attend this year, PKDCON 2022 will provide a rich educational experience, meaningful interactions with other participants, and engaging Q&A sessions with faculty.

Join us for our second virtual conference June 24 – 25.

Last year, 1,600 attendees from over 40 countries joined us for our two-day virtual event. Register today to learn alongside PKD community members just like you. Register now!

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

This could be you!

PKD Connect Ambassador

Interested in volunteering in your Community? Complete our Become a Volunteer form or email volunteers@pkdcure.org.

Kyle Tacconi

Walk Coordinator

I am the daughter of a PKD patient, and I became involved with the PKD Foundation shortly after my father received a living donor kidney from his sister in 2015-on the same day his dad died 50 years earlier of PKD. I am committed to help raise funds to find a cure for PKD for my family. I grew up in Ashburn, VA and currently live in Aldie, VA with my husband and two sons.

Michelle Hoffmann

Walk Coordinator

With my daughter, Kyle Tacconi, we are the coordinators for the National Capital Walk. I walk in support of my husband who has PKD. He received a living donor kidney from his sister in 2015 — on the same day his dad died 50 years earlier of PKD. I am committed to help raise funds to find a cure for PKD.

Page last updated March 2022

English Spanish