Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
New England Community Meeting
Meet & Greet with Beth Israel Deaconess Medical Center
Join us for our upcoming community meeting via video conference!
PKD Foundation ADPKD Centers of Excellence and Partner Clinics is a national network of providers meeting patient centered, specialized ADPKD criteria established by the PKD Foundation. Join our Community to meet your local ADPKD Center of Excellence – Beth Israel Deaconess Medical Center. ADPKD Clinic Director, Peter Czarnecki, MD will lead our discussion.
Bring your questions!
Event Details:
Wednesday, Feb. 26, 2025
7 – 8:30 p.m.
Video conference link will be emailed upon registration.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Dean Lotito
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
I started volunteering for the Foundation in 2002. I was overwhelmed by the dedication of my fellow volunteers, and that continues to this day. Helping people cope with PKD, and raising money towards a treatment and cure are very rewarding for me. The people I met through my work with the Foundation inspire me to HELP END PKD!
Mike Skinner
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I am back as the Walk for PKD Ambassador for the Boston Walk.
Page last updated February 2024
