Upcoming Events
Find events happening near New York City
Walk for PKD - Your Way
Walk for PKD - Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD - Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Get Involved
Are you interested in helping us grow the New York City Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Peer Mentorship Program
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
- Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
- Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.
Walk for PKD
Registration for this years Walk for PKD is now open! Find your walk at walkforpkd.org
Centers of Excellence
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
ADPKD Registry
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Linda Lebowitz
PKD Connect Ambassador
I am a retired elementary school teacher and love all things having to do with nature! I play guitar and sing in a rock band. My two grown sons are 34 and 24. I was diagnosed with PKD in my 30s after learning that my son had PKD after an irregular urine test. I was adopted so there was no prior family medical information.
It is my pleasure to be able to offer support to others who have PKD. This foundation has been an incredible resource and emotional support for me. I would like to be that for others.
Thais Flaitt
PKD Connect Ambassador
It is an immense honor to join the esteemed group of volunteers at the PKD Foundation. As a third-generation PKDer, my journey with polycystic kidney disease has been deeply personal and transformative. Since 2012, I have actively participated in regional community meetings, initially in Omaha, NE, and later in the vibrant community of New York City. Originally hailing from Sao Paulo, Brazil, I have found a second home in NYC, where I currently reside and work. I dedicate my professional life to teaching theater arts to hundreds of public high school students, fostering creativity and self-expression in our vibrant youth. Beyond the stage, my true passion lies in serving others, especially those impacted by PKD. Now, as I step into the PKD Connect Ambassador role with the PKD Foundation, I am eager to leverage the incredible resources and support network available to make a meaningful difference in our local community. Together, with dedication and compassion, I believe we can enhance the lives of those impacted by PKD. With gratitude and enthusiasm, I look forward to contributing to our NYC community!
Volunteering at the PKD Foundation is important to me because it allows me to contribute to a cause that I deeply care about, support individuals affected by PKD like me, and make a meaningful impact in the lives of others.
