Welcome to the
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
New York City Community Meeting
Pre-implantation Geneteic Testing
Join the New York City Community for our next education meeting via video conference. Dr. Sinem Karipcin from Columbia University will join us for a discussion about pre-implantation genetic testing.
There will be time to share your PKD journey, make connections and hear from others within the PKD community who understand what you are experiencing.
Wednesday, January 31, 2024
6:30 pm – 8 pm
Video conference link will be emailed upon registration.
Thank you to everyone who attended and supported the 2023 Walk for PKD. Fundraising remains open until Dec. 31. Help us reach our goal by donating to your local Walk for PKD today. A cure is our finish line!
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
PKD Connect Ambassador
Hi, I’m Meg and am excited to be the Co-PKD Connect Ambassador of the NYC Community! I first discovered the PKD Foundation when my son was born in 2011. He had enlarged kidneys in utero and was diagnosed with ADPKD when he was born. Since then, I strive to learn more about the disease, how it relates to the body, and how it affects people’s lives. I am currently working towards a master’s degree in clinical nutrition as a Registered Dietitian, specializing in PKD.
PKD Connect Ambassador
My name is Sarah Giller and I am Co-PKD Connect Ambassador of the New York City Community of the PKD Foundation. I am personally affected by PKD as was my mother before me. I am working and will continue to work towards a cure for this devastating disease so that my children and all children don’t have to face a future with PKD. I hope you’ll join us as we unite to fight PKD.
Page last updated December 2022