Welcome to the

New York City

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

New York City
Walk for PKD

Virtual Walk

The Walk for PKD is the nation’s largest fundraiser supporting PKD research.

Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at walkforpkd.org/newyorkcity.

If you have questions, email us at newyorkcitywalk@pkdcure.org.

The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.

Session recordings from our 2022 event will be available in our Resource Library soon!

 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Meg Munits

PKD Connect Ambassador

Hi, I’m Meg and am excited to be the Co-PKD Connect Ambassador of the NYC Community! I first discovered the PKD Foundation when my son was born in 2011. He had enlarged kidneys in utero and was diagnosed with ADPKD when he was born. Since then, I strive to learn more about the disease, how it relates to the body, and how it affects people’s lives. I am currently working towards a master’s degree in clinical nutrition as a Registered Dietitian, specializing in PKD.

Sarah Giller

PKD Connect Ambassador

My name is Sarah Giller and I am Co-PKD Connect Ambassador of the New York City Community of the PKD Foundation. I am personally affected by PKD as was my mother before me. I am working and will continue to work towards a cure for this devastating disease so that my children and all children don’t have to face a future with PKD. I hope you’ll join us as we unite to fight PKD.

Page last updated March 2022

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