Welcome to the
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Walk Volunteer Needed!
We are in search of a key volunteer to lead efforts for the Portland Walk for PKD. This volunteer leader role is vacant and the continued success of the Portland Walk for PKD relies on leadership in this role and in your area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please reach out.
Email us at firstname.lastname@example.org with the subject line: Portland Walk Volunteer Interest and we would be happy to talk with you!
Walk for PKD
Saturday, September 10
Howard M. Terpenning Recreation Complex
Softball Field Area
Registration/site opens: 9 a.m.
We are excited to return to in-person events this fall, where you will be part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at walkforpkd.org/portland.
If you have questions, email us at email@example.com.
The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.
Session recordings from our 2022 event are available in our Resource Library!
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
PKD runs in my family and I want to make a difference by providing the local area with resources and opportunities to connect with one another. It is rewarding to join together and learn more about what we can do to fight PKD through education, nutrition, advocacy, support, fundraising, and research.
PKD Connect Ambassador
My husband and I were involved with the PKD Walk when we moved to Portland 16 years ago. We took a break to have a baby, get a transplant, brain surgery for our 5 year old who had a brain cyst, do foster care, adopt our second child, have radiation for a benign brain tumor (myself), and survive 8 more surgeries for complications related to PKD(my husband). After all that we’re back, more determined than ever!
I’m very excited to be part of such an amazing group of people who are committed to finding a cure for this terrible disease! As my husband always says, “there’s always someone much worse than myself”, with that attitude you can accomplish anything!
Page last reviewed March 2022