Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Salt Lake City Walk for PKD
Saturday, September 21
Sugar House Park, Fabian Pavilion
Event starts: 9:30 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/saltlakecity.
If you have questions, email us at saltlakecitywalk@pkdcure.org.
|
|
Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Lynette Menke
PKD Connect Ambassador
Hello! I am a blessed post preemptive living donor transplant recipient. I followed my PKD journey since I was 19 and it shaped my career, starting as a Renal Dietitian. I was able to prolong my progression longer than my Dad, Aunt and Grandmother and received a kidney from my husband March 24, 2022 at the University of Utah. Professionally, I am in healthcare technology sales and strategy. In my free time, I enjoy horses and show competitively in a western discipline called reined cow horse. I have been a passionate advocate for earlier diagnosis of CKD and am excited to be able to have this chance to be involved. I look forward to meeting all of you!
Xandy Harker
Walk for PKD Ambassador
I’m the new Walk for PKD Ambassador. Ask me about the Salt Lake City Walk for PKD!
Page last updated July 2023
