Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Registration for PKD Connect Conference (PKDCON) is open!
PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.
The PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Mark Fisher
PKD Connect Ambassador
I grew up in Simi Valley, CA and from a very young age, I rode my horse to school. I am blessed to be married to the most beautiful woman and we have four children and six grandchildren. It is with so much joy and satisfaction I have been able to see all four of my children mature into beautiful adults and fantastic parents.
A major event happened to me that greatly changed my views towards life.
In 2014, I was diagnosed with two different types of stage four kidney cancer and PKD. My left kidney was removed but PKD had formed clusters of cysts around my remaining kidney and other organs. However, due to my persistence in learning everything I could I became a vegan/vegetarian, a fan to research and developed a new perspective in life. The most important moments, even though some are sad, in my life have changed me forever; I am ambassador for helping others and a loyal supporter and advocate for those in need.
It is with such honor that I have been selected as the PKD Connect Ambassador for the San Francisco Community of the PKD Foundation. In addition to volunteering with the PKDF, I am a founding member of UCLA’s Advisory Board for Patient Records and My Chart system.
Page last updated December 2022