Welcome to the

St. Louis

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Virtual Kidney Fight Trivia Night

Saturday Sept. 24, 2022

7:00 – 9:30 p.m.
Zoom breakout rooms open at 6:30 p.m.

Entrance fee:
$160 for a team of 8
$20 for individual players

Addons:
Mulligans: $9/team (one per round can be played)
Bonus Round: $10/per team (played during intermission)

Come join us for a virtual night of 7 rounds, plus an optional bonus round, of trivia fun, complete with a professional, entertaining, and engaging emcee from Trivia Riot! You will get the full trivia experience, while supporting the mission of funding critical PKD research through the 2022 St. Louis Walk for PKD. 100% of money raised goes toward PKD research to find more treatments and a cure.  

The cool thing about virtual trivia is that your teammates can live anywhere and be able to join your trivia team in a night of fun! 

We have a maximum space of 50 trivia teams, so register a trivia team today! If you do not have a trivia team and are registering individually, we will put you together with other registered individuals to form a trivia team. 

Pay by clicking the button below and making a donation to the St. Louis Walk that matches your table fee or individual fee plus add ons.

To complete your team or individual registration and for any questions, please email us at glen.kemperpm@gmail.com

St. Louis
Walk for PKD

Sunday, October 9

Tower Grove Park, Sons of Rest Pavilion

Registration/site opens: 9:30 a.m.

We are excited to return to in-person events this fall, where you will be part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at walkforpkd.org/stlouis.

If you have questions, email us at stlouiswalk@pkdcure.org.

St. Louis Community Meeting

Join the St. Louis Community for a Walk for PKD Update. We will share what is planned for walk day as well as what volunteers need to know!

We will also have time to make connections, share your PKD journey and hear from others within the PKD community who understand what you are experiencing.

Event Details:

Monday, Sept. 12, 2022
7 – 9 pm

Video conference link will be emailed upon registration.

The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.

Session recordings from our 2022 event will be available in our Resource Library soon!

 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Jean Sommer

PKD Connect Ambassador

I have been the volunteering for the St. Louis Community since 2014. I decided to volunteer because, as an ADPKD and PLD patient, I wanted to learn as much as I could about my conditions and I wanted to make a difference in the lives of others.

Learning about PKD and PLD from speakers at local events and national PKD Foundation events, like the PKDCON, also helped me face my fear of these diseases. I was very much at peace when I had my liver transplant in August 2016.

As a PKD Connect Ambassador, I hope that I can help ease the fears of others by providing education meetings for my Community members and rallying them together for our annual Walk for PKD. I was also inspired to volunteer because PKD runs in my family—both my sister and my brother are affected by this disease. In addition, I have two children who each have a 50 percent chance of having PKD. I enjoy organizing the Walk because I want there to be treatments or a cure so that my children, and others, will not have to go through what I have gone through.

Page last updated March 2022

English Spanish