Welcome to the

St. Louis


With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Virtual Kidney Fight Trivia Night

Friday, April 14, 2023

7:00 – 9:30 p.m.
Zoom opens at 6:30 p.m.

Entrance fee:
$160 for a team of 8
$20 for individual players

Mulligans: $9/team (one per round can be played)
Bonus Round: $10/per team (played during intermission)

Come join us for a virtual night of 7 rounds, plus an optional bonus round, of trivia fun, complete with a professional, entertaining, and engaging emcee from Trivia Riot! You will get the full trivia experience, while supporting the mission of funding critical PKD research through the 2023 St. Louis Walk for PKD. 100% of money raised goes toward PKD research to find more treatments and a cure.

The cool thing about virtual trivia is that your teammates can live anywhere and be able to join your trivia team in a night of fun!

If you do not have a trivia team and are registering individually, we will put you together with other registered individuals to form a trivia team.

Click here for Trivia sign up instructions and rules.

To complete your team or individual registration and for any questions, please email Jean Sommer, stlouiswalk@pkdcure.org or Glen Kemper, glen.kemperpm@gmail.com

St. Louis Community Meeting

Join us for our next Community meeting via video conference. Share you PKD journey and hear from others within the community who understand what you are experiencing. 


Monday, April 10, 2023
7 pm – 8:30 pm

Video conference link will be emailed upon registration.

abbreviated lockup of PKD Connect Conference 2023 (PKDCON 2023) with PKD Foundation logo and illustration of Denver Colorado mountains

Registration for PKD Connect Conference (PKDCON) is open!

PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Jean Sommer

PKD Connect Ambassador

I have been the volunteering for the St. Louis Community since 2014. I decided to volunteer because, as an ADPKD and PLD patient, I wanted to learn as much as I could about my conditions and I wanted to make a difference in the lives of others.

Learning about PKD and PLD from speakers at local events and national PKD Foundation events, like the PKDCON, also helped me face my fear of these diseases. I was very much at peace when I had my liver transplant in August 2016.

As a PKD Connect Ambassador, I hope that I can help ease the fears of others by providing education meetings for my Community members and rallying them together for our annual Walk for PKD. I was also inspired to volunteer because PKD runs in my family—both my sister and my brother are affected by this disease. In addition, I have two children who each have a 50 percent chance of having PKD. I enjoy organizing the Walk because I want there to be treatments or a cure so that my children, and others, will not have to go through what I have gone through.

Amber Sommer

Amber Sommer

Walk for PKD Ambassador




Page last updated December 2022

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