Welcome to the
TAMPA
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Tampa
Walk for PKD
Saturday, October 19
Fort De Soto Park, Shelter 14
Registration/site opens: 9:30 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/tampa.
If you have questions, email us at tampawalk@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Melissa Coffman
PKD Connect Ambassador
It is an honor to be selected as the PKD Connect Co-Ambassador for the PKD Foundation’s Tampa Bay Community. As a caregiver to someone with ADPKD, I find myself passionate about helping others on their journey. I look forward to providing support and guidance and being accessible for those that may havequestions and concerns.
My hobbies are photography, wildlife observation, and travel. In my spare time, I am a creative soul; I enjoy crafting, designing, and working on projects. Spending quality time with family and friends is something I enjoy and find most rewarding.
Lorin Valk
Walk for PKD Ambassador
I first learned about PKD from a young age because this disease has affected many of my family members. I love to volunteer and PKD is so near and dear to my heart–this is why I’m becoming a Co-Coordinator for the Walk. This will be my second year with the Tampa Chapter. So this is my journey to continue my family dream of finding the cure to end PKD!
Kylie Burcaw
PKD Connect Ambassador
Hi! My name is Kylie and I ama nursing and nutrition student at the University of Pennsylvania with a strong ambition to become a family medicine physician in the future. My passion lies in the intersection of healthcare and nutrition, particularly in the realmof plant-based nutrition. I spend a good amount of time reading about nutrition and PKD research, seeking to deepen my understanding of how diet can impact health outcomes. In my free time, I love immersing myself
in the study of languages, specifically Korean and Italian. I amoriginally from Tampa, Florida and hope to bring a diverse background and a genuine commitment to making a positive difference in the lives of others through my studies and personal interests.
I volunteer for the PKD Foundation because of my deep personal connection to the cause. With a family history of Autosomal Dominant Polycystic Kidney Disease (ADPKD), I witnessed the impact it can have on individuals and their loved ones. In March of 2022, I received my own diagnosis, further fueling my determination to make a difference. Volunteering for the PKD Foundation allows me to actively contribute to the fight against this genetic disorder, raising awareness, supporting research initiatives, and providing a network of resources for individuals affected by ADPKD. Through my involvement, I hope to bring hope and support to others facing similar challenges, and ultimately work towards finding a cure for this condition.
Harold Saul
Co-Walk for PKD Ambassador
Harold Saul is an attorney who practices in Tampa Florida. He has been involved with the PKD Foundation as a volunteer for over 25 years, having served as co-chapter coordinator for 2 different chapters, as well as serving on the Friends Advisory Committee (now the Volunteer Advisory Committee) and served on the PKD Foundation Board of Directors from 1997-2007. He is currently the co-chair of the Tampa Walk for PKD, and captains the team, Ivan’s Investors for a PKD Cure, in honor/memory of his father, Ivan Saul, who was a fierce advocate for PKD Patients.
Page last reviewed July 2023
