Welcome to the

Twin Cities


With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

PKD Education Forum

PKD Foundation Centers of Excellence, University of Maryland and Mayo Clinic – Rochester, are teaming up to offer a 1/2 day of education.

Attend virtually or in person.

Event Details:

Saturday, May 4, 2024
10 am – 12:30 pm Eastern time

In person location:

Health Sciences Research Facility (HSRF) II Auditorium
20 Penn St
Baltimore MD 21201


Jynarque ® (Tolvaptan), Genetics, PKD Nutrition, PKD Research


Valeriu Cebotaru, MD, Stephen Seliger, MD, MS, Neera Dahl, MD, PhD,  Kayla Kolbert, MGCS, CGC, Fouad Chebib, MD

Moderated by Terry Watnick, MD

Download Event Flyer to Register



Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Kevin O'Connor

Kevin O'Connor

Walk for PKD Ambassador




Patty Kelley

Patty Kelley


Patty Kelley is the Connect Ambassador for the Twin Cities PKD chapter. She inherited Polycystic Kidney Disease from her mother and has many siblings, aunts, uncles who also had PKD. She believes in the mission of the PKD Foundation because she has observed the impact on care and treatment, brought by research, over the generations of her family. She had a renal transplant in October 2019 with a living donor kidney at the Mayo Clinic.

Patty is a retired Registered Nurse. She has been married 42 years and she and Jim have no children.



Page last updated July 2023