Education Advisory Panel
Announcing the new Education Advisory Panel
At the PKD Foundation, we believe education is the key to identifying new practices and learning how to implement changes to create better outcomes. In the world of polycystic kidney disease (PKD), it is imperative that patients, caregivers, physicians, and healthcare providers who support individuals with ADPKD and ARPKD share a common language and learning process.
To ensure the education provided by the Foundation is robust, designed with the voice of the patient, and focused on the most appropriate areas for individuals with PKD, we launched an Education Advisory Panel (EAP).
The EAP will act as a body of PKD experts who contribute to the Foundation’s education program with their unique inter-professional and multidisciplinary perspectives, informing and helping guide program and curriculum developments in accordance with the mission and vision of the Foundation.
Current EAP roster
Chair
ADPKD-focused nephrologist
Dr. Fouad T. Chebib, MD, FASN
Biography
Renal Dietician
Haewook Han, PhD, RD, LDN, FNKF
Biography
ARPKD Nephrologist
Cynthia Pan, MD
Biography
Radiologist
Pardeep Mittal, MD
Biography
Pain Specialist
Christine Hunt, MD
Biography
Renal Nurse
Elyssa Noce, MSN, APRN
Biography
ADPKD Patient
Cindy Bestrycki, DMSc, PA-C
Biography
ADPKD Caregiver
Marcia O’Brien
Biography
ARPKD Caregiver
Alix Piccirilli
Biography
Alix Piccirilli is a Change Management Consultant for the World Bank Group, specializing in training, communication, and relationship management. With over 20 years in the information technology and banking industries, she focuses on the development and delivery of all facets of training & education, business process improvement, operations, and user interface & website design. Her enthusiasm for individual and team skills development, as well as relationship building, is contagious and includes a flair for making learning fun. Alix is a native of New York and received her bachelor’s degree in Communications from the University of Albany, NY. She is a military spouse and mom of 2 boys and a mini dachshund, they currently live in Northern Virginia. Her oldest son has ARPKD and since his diagnosis in 2017, she has become a relentless advocate for PKD families.
Page last updated February 2022