Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
6:00 pm - 7:00 pm
6:30 pm - 8:30 pm
This webinar will introduce the problem of CKDu, a form of chronic kidney disease primarily affecting young men in rural agricultural communities, with no identifiable link to common causes of CKD.
This webinar will introduce the problem of CKDu, a form of chronic kidney disease primarily affecting young men in rural agricultural communities, with no identifiable link to common causes of CKD. We aim to bring together the leading experts of the ISN International Consortium of CKDu Collaborators (i3C) to share their expertise with the kidney healthcare providers from the NIS and Russia Region. Our speakers will present an overview of the epidemiology, potential etiological factors, clinical spectrum, and management, as well as research methodologies applicable to assess CKDu prevalence. Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common hereditary kidney disorder, yet general nephrologists often report uncertainty regarding optimal diagnosis, risk stratification, and timing of interventions. This webinar offers a practical, case-based learning experience designed to build confidence in these essential aspects of ADPKD care. Following a concise overview of the disease and highlights from the KDIGO 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of ADPKD, attendees will engage in virtual grand rounds featuring real-world cases that illustrate key decision points in diagnosis, monitoring, treatment initiation, and referral.
Special attention will be given to use of tools such as the Mayo Imaging Classification (MIC), the PROPKD score, and genetic testing, as well as shared decision-making around therapies like tolvaptan. Participants will leave better equipped to identify rapid progressors, implement timely nephroprotective strategies, and coordinate multidisciplinary care.
Join us for an in person meeting focused on connection, conversation and learning.
Meet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
Mayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
Lace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!