Research 101: How Clinical Trials and the ADPKD Registry Drive Progress

Overview:
We’re planning an educational webinar focused on helping patients and families understand the importance of PKD research participation. The session will simplify the basics of clinical trials, outline what participation involves, and highlight how research drives new treatments and hope for the PKD community. It will also spotlight the role of the ADPKD Registry in connecting patients, data, and researchers to accelerate progress.

Learning Objectives:

Explain how clinical trials work and their role in developing PKD treatments

Describe the purpose and impact of the ADPKD Registry

Identify ways patients and families can get involved in research

Speakers:

Chris Chen, VP of Research Programs, PKD Foundation (Confirmed)

Stephen Seliger, MD, University of Maryland (Confirmed)

Tasha Vraspir, Patient Advocate (Pending)