Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
San Francisco Community Meeting
Welcome Back! San Francisco Community Kickoff
Thu, Sep 3, 2026
Oscar Howe
Details
- Date:
- September 3
- Time:
-
7:00 pm - 8:00 pm
- Website:
- https://support.pkdcure.org/event/community-meeting-or-san-francisco-9-3-2026/e825742
Venue
Organizer
- Oscar Howe
- Email sanfrancisco@pkdcure.org
Welcome Back! San Francisco Community Kickoff
It’s been a while, and we’re excited to reconnect and welcome Oscar Howe, our new San Francisco PKD Connect Ambassador.
This first meeting is all about reconnecting and building a strong local community. You’ll have the chance to meet others affected by PKD, share your experiences, and help shape what you’d like this community to become.
We’re also honored to welcome Dr. Meyeon Park, Director of the UCSF PKD Foundation Center of Excellence, for an informal Q&A. Bring your questions and hear the latest about PKD care and research.
Whether you’re living with PKD, caring for a loved one, a family member, researcher, healthcare professional, or simply interested in learning more, you’re welcome here. We look forward to meeting you and building this community together.
Other Events
New York City Community Meeting
VirtualMeet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
COE | Mayo Rochester | 2026 Updates in PKD
VirtualMayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
COE | Columbia | NYC Together for PKD
Sutton Place ParkLace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
PKD Applied Underwriters Invitational Golf Event 2026
Lakewood National Golf ClubJoin us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!