St. Louis Community Education Meeting
VirtualI Have PKD. What do I do?
7:00 pm - 8:30 pm
6:00 pm - 7:30 pm
Join other PKD patients, providers, caregivers and supporters for advocacy day virtual meetings on March 20. Advocates will have the chance to engage directly with federal lawmakers and staff and ...
Join other PKD patients, providers, caregivers and supporters for advocacy day virtual meetings on March 20. Advocates will have the chance to engage directly with federal lawmakers and staff and encourage them to support policies that will advance PKD research and care.
I Have PKD. What do I do?
Join us for an informative and reassuring conversation with Dr. Roque Diaz Wong, Nephrologist, San Antonio Kidney, as he breaks down what to expect if kidney function declines. This session is designed to educate without overwhelming and will cover:
Join us for our upcoming community meeting via video conference!
Share your journey and hear from others within the PKD community who understand what you are experiencing. We'll share resources to help you manage living with PKD.
Did you know that approximately 10% of ADPKD patients develop the disease due to a spontaneous genetic mutation, with no known family history of PKD? Dr. Juddith Maddatu, Clinic Director, and Dr. Melissa Makar from Indiana University School of Medicine, will join us this month for an engaging discussion about the genetics of ADPKD, spontaneous mutations, and what this means for patients and families.