You and fellow PKD advocates will meet with Members of Congress urging them to support policies that will improve PKD treatment and care including continued federal funding for PKD research and removing barriers to living organ donation.
Join other PKD patients, providers, caregivers and supporters for advocacy day virtual meetings on March 20. Advocates will have the chance to engage directly with federal lawmakers and staff and encourage them to support policies that will advance PKD research and care.
We’re excited to welcome Legislator Porcari from New York State Senator Samra Brouk’s office to discuss legislation aimed at expanding tax deductions for organ donors—helping to ease financial concerns and encourage more life-saving donations.
What's better than trivia night? A trivia night benefitting the PKD community!
We’re excited to introduce our new PKD Connect Ambassador, Sophie Palopoli, who will be joining us to kick off this exciting virtual gathering of the New Orleans PKD community! Sophie will share her vision for staying connected and engaged as we continue to build a strong, supportive community. This meeting is a fantastic opportunity to ...
Share your journey and hear from others within the PKD community who understand what you are experiencing. We'll share resources to help you manage living with PKD.
