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PKD Foundation Centers of Excellence

The PKD Centers of Excellence program is based on the belief that the best way to provide PKD-centered care is through patient-focused, comprehensive care coordinated and support by an integrated care team.

PKD Foundation ADPKD Registry

The ADPKD Registry is patient-powered and patient-centered. Patients answer questions about their health and PKD’s impact on their life to help create an essential resource for researchers to develop better outcomes that reflect patient perspectives.

Resources for Caregivers
5 Powerful Updates to the ADPKD Registry
  • ADPKD
  • ADPKD Registry
  • Caregivers
  • Research
5 Powerful Updates to the ADPKD Registry
Introduction to PKD: What should I know about PKD?
  • ADPKD
  • ARPKD
  • Caregivers
  • Education
  • Living with PKD
  • Newly Diagnosed
  • Research
  • The Basics of PKD
Introduction to PKD: What should I know about PKD?
Losing a Child with ARPKD
  • ARPKD
  • Caregivers
  • Family Life
  • PKD Parents
  • Young Children
Losing a Child with ARPKD
Managing Mental Health and PKD
  • ADPKD
  • ARPKD
  • Caregivers
  • Education
  • Family Life
  • Living with PKD
Managing Mental Health and PKD
Managing PKD and Fatigue
  • ADPKD
  • ARPKD
  • Caregivers
  • Family Life
Managing PKD and Fatigue
KETO-PKD Study
  • Approaching Kidney Failure
  • Caregivers
  • Featured
  • Living with PKD
  • Newly Diagnosed
KETO-PKD Study
Caregivers: Recognizing When Day-to-Day Stress Becomes a Health Issue
  • ADPKD
  • ARPKD
  • Caregivers
  • Family Life
  • Living with PKD
  • PKD Parents
Caregivers: Recognizing When Day-to-Day Stress Becomes a Health Issue
PKD in Children
  • Caregivers
  • PKD Parents
PKD in Children
The PKD Foundation does not offer medical advice. The information shared on this website is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We strongly recommend that your care and treatment decisions be made in consultation with your healthcare professional team.