Welcome to your PKD Community

Communities are groups of volunteers — PKD patients, family members, and loved ones — who want to learn, connect, and take action with others.
In fact, the first PKD Communities were formed in the 1980s to fund research, tell others about the disease, and provide one another with help and hope.
Whether you’re a parent of a child with PKD, a young adult searching for connection, or looking to learn more about a PKD diagnosis, we have resources for you.

The PKD Parents Community has been serving and connecting parents of children with ARPKD and ADPKD for nearly 25 years. It offers support, compassion, and guidance, helping connect families with experts and other local PKD families. Are you a PKD parent? Learn more today.

The PKD Thrive Community was launched in 2022 to bring young adults together. PKD Thrive offers support, compassion, and a safe place for them to connect and interact with others who understand the impact of PKD.

We’re a proud member of PKD International, a global alliance of patient organizations dedicated to finding a cure for PKD.

PKD International is leading the fight against PKD for millions worldwide by uniting the patients and medical professionals committed to ending PKD, providing opportunities to learn the latest on PKD, and supporting the most promising research and clinical trials.

Find International Affiliates here.

Learn more about all of our upcoming events, filter by location, and mark your calendars.

Click here to see the calendar of events.