Walk for PKD - Your Way
Walk for PKD - Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD - Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Get Involved
Are you interested in helping us grow the Milwaukee Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Peer Mentorship Program
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
- Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
- Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.
Walk for PKD
Registration for this years Walk for PKD is now open! Find your walk at walkforpkd.org
Centers of Excellence
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
ADPKD Registry
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Jacque English
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
As the Milwaukee Chapter/Walk Coordinator I actively fight to END PKD. Being a mother myself and having lost my mom to PKD, I value the vision of a world without PKD. I am honored to support the Foundation and the hope it provides all of us impacted by PKD.
Sara DornBrook
Walk for PKD Ambassador
For over 20 years, PKD has affected our family.
My husband was diagnosed when he was 23 years old. After about 15 years of struggling with this disease, the doctors decided that it was time to start the transplant process. Miraculously throughout the process, we learned that I was a match. The transplant was a success and as of this year, 2024, he is going on 3 years strong! This is an awful disease and we pray that it doesn’t one day affect our children! I have made it my mission in life to do what I can to help end this awful disease!
I am so honored to be apart of the PKD foundation and their amazing team!
Cathy McVey
PKD Connect Ambassador
When my daughter, Meredith, was diagnosed with PKD in her early 20’s, our
family got in touch with the Milwaukee PKD Foundation Chapter to learn all we
could about the disease. The Milwaukee group was so incredibly giving of their
time, knowledge and emotional support that we immediately felt like family. My
husband and I continue to volunteer and raise money that supports research to
END PKD for our daughter. As Milwaukee Connect Ambassador, I hope I can
help others to know that they are not alone in their journey with PKD.
I’ve lived in the Milwaukee area for over 25 years and raised our 2 children here.
Now that I’m retired, I like to spend time playing pickleball and golf when at home. While traveling, my husband and I enjoy visiting friends around the
country and sightseeing.
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