Walk for PKD - Your Way
Walk for PKD - Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD - Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Get Involved
Are you interested in helping us grow the National Capital Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Peer Mentorship Program
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
- Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
- Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.
Walk for PKD
Registration for this years Walk for PKD is now open! Find your walk at walkforpkd.org
Centers of Excellence
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
ADPKD Registry
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Judy Ashley
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
To know me is to know my family and PKD: how PKD defines my family, but
does not hold us back. I am a second generation PKD patient. My
mom died 27 years ago at the age of 62 due to complications from dialysis. I knew myself and four siblings had PKD, but the effects of this horrible disease always seemed to be out in the distance for us all. I look back over the years and see how my family has been blessed again and again with kidney transplants. What have we all learned with having PKD?
Be your own advocate! My family continues to have hope for the future that there will be a cure for PKD and our children and grandchildren will not be challenged by this disease. In the meantime, we will fight for a cure. #endpkd #donatelife To all the donors out there, thank you for giving us something so precious. We won’t let you down!
Michelle Hoffmann
Walk Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I walk in support of my husband who has PKD. He received a living donor kidney from his sister in 2015 — on the same day his dad died 50 years earlier of PKD. I am committed to help raise funds to find a cure for PKD.
Recent Events
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