Walk for PKD - Your Way
Walk for PKD - Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD - Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Get Involved
Are you interested in helping us grow the Portland Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Peer Mentorship Program
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
- Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
- Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.
Walk for PKD
Registration for this years Walk for PKD is now open! Find your walk at walkforpkd.org
Centers of Excellence
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
ADPKD Registry
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Linda Herman
PKD Connect Ambassador
My husband and I were involved with the PKD Walk when we moved to Portland 16 years ago. We took a break to have a baby, get a transplant, brain surgery for our 5 year old who had a brain cyst, do foster care, adopt our second child, have radiation for a benign brain tumor (myself), and survive 8 more surgeries for complications related to PKD(my husband). After all that we’re back, more determined than ever!
I’m very excited to be part of such an amazing group of people who are committed to finding a cure for this terrible disease! As my husband always says, “there’s always someone much worse than myself”, with that attitude you can accomplish anything!
Recent Events
Find events happening near Portland
- ADPKD
- Caregivers
- Education
- Living with PKD
- Newly Diagnosed
- PKD News
- The Basics of PKD
May 1 | 7:00 pm - 8:30 pm
