Walk for PKD - Your Way
Walk for PKD - Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD - Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Get Involved
Are you interested in helping us grow the Tampa Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Peer Mentorship Program
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
- Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
- Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.
Walk for PKD
Registration for this years Walk for PKD is now open! Find your walk at walkforpkd.org
Centers of Excellence
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
ADPKD Registry
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Lorin Valk
Walk for PKD Ambassador
I first learned about PKD from a young age because this disease has affected many of my family members. I love to volunteer and PKD is so near and dear to my heart–this is why I’m becoming a Co-Coordinator for the Walk. This will be my second year with the Tampa Chapter. So this is my journey to continue my family dream of finding the cure to end PKD!
Kylie Burcaw
PKD Connect Ambassador
Hi! My name is Kylie and I ama nursing and nutrition student at the University of Pennsylvania with a strong ambition to become a family medicine physician in the future. My passion lies in the intersection of healthcare and nutrition, particularly in the realmof plant-based nutrition. I spend a good amount of time reading about nutrition and PKD research, seeking to deepen my understanding of how diet can impact health outcomes. In my free time, I love immersing myself
in the study of languages, specifically Korean and Italian. I amoriginally from Tampa, Florida and hope to bring a diverse background and a genuine commitment to making a positive difference in the lives of others through my studies and personal interests.
I volunteer for the PKD Foundation because of my deep personal connection to the cause. With a family history of Autosomal Dominant Polycystic Kidney Disease (ADPKD), I witnessed the impact it can have on individuals and their loved ones. In March of 2022, I received my own diagnosis, further fueling my determination to make a difference. Volunteering for the PKD Foundation allows me to actively contribute to the fight against this genetic disorder, raising awareness, supporting research initiatives, and providing a network of resources for individuals affected by ADPKD. Through my involvement, I hope to bring hope and support to others facing similar challenges, and ultimately work towards finding a cure for this condition.
Harold Saul
Co-Walk for PKD Ambassador
Harold Saul is an attorney who practices in Tampa Florida. He has been involved with the PKD Foundation as a volunteer for over 25 years, having served as co-chapter coordinator for 2 different chapters, as well as serving on the Friends Advisory Committee (now the Volunteer Advisory Committee) and served on the PKD Foundation Board of Directors from 1997-2007. He is currently the co-chair of the Tampa Walk for PKD, and captains the team, Ivan’s Investors for a PKD Cure, in honor/memory of his father, Ivan Saul, who was a fierce advocate for PKD Patients.
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