The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD. We do this by promoting fundraising, education, advocacy, support, and awareness on a national level, along with remote services to local communities across the country.

We know that not everyone can get involved locally, which is why we created several remote volunteering opportunities to help you get involved.

Click on the links below to learn more or apply today!
If you aren’t sure how you’d like to get involved, fill out and submit our volunteer form.
We’ll follow up with you to match you with an opportunity!
Fundraising Ambassadors

The Fundraising Ambassador plays an important role in the local PKD community by identifying local fundraising opportunities and organizing events.
With support from PKD Foundation staff, your contribution will drive fundraising that supports the mission of the PKD Foundation.

PKD Connect Interpreters

PKD Connect Interpreters translate emails and assist with returning phone calls on an as-needed basis.
Interpreters connect individuals with PKD Foundation programs and services as needed, assisting with building a sense of community for non-English speaking patients and families.

Peer-to-Peer Mentors

Our peer mentoring program connects patients, family members, or friends with someone who can be a shoulder to lean on.
Whether you or someone you care about has just been diagnosed, Peer Mentors are here to help by listening to concerns and sharing similar experiences to ensure no one feels alone.
If you have experience with PKD, consider becoming a peer mentor today.

Community Reaction Panel

The PKD Foundation Community Reaction Panel provides feedback on pre-determined topics of interest to Industry Alliance partners and PKD Foundation programs and services.
The panel consists of patients and caregivers with varied experiences across the continuum of disease progression and includes experience with ADPKD and ARPKD.

PKD Foundation Volunteer Code of Conduct

Volunteers shall act honestly and ethically while in the performance of their volunteer duties. Volunteers shall treat all PKD Foundation employees, volunteers, and community members with respect, courtesy, and dignity. Volunteers shall not discriminate and shall be respectful of ethnic, national, and cultural differences.