×

Search Our Site

Newly Diagnosed Find Care Current Treatments
Research Pipeline Peer Review Process Data Resources Kaplan Award PKD Outcomes Consortium Clinical Trials Industry Alliance Fellowships
Patient Handbooks Treating PKD PKD Life Magazine View All Resources
View All Resources
Find Care Find Your Community Find Us On Social Find a Peer Mentor Hope Line International Affiliates
Events
March 19

12:00 am - 11:59 pm

In-Person Hill Day 2025
March 20

12:00 am - 11:59 pm

Virtual Hill Day 2025
See All Events
Walk for PKD
Fundraise Your Way
Give Online
The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD. We do this by promoting fundraising, education, advocacy, support, and awareness on a national level, along with direct services to local communities across the country.

If your life has been changed as a patient, caregiver, or parent of a child with PKD, consider volunteering to support our research programs below. Your story, perspective, and experience today can shape the way we treat PKD tomorrow.
If you aren’t sure how you’d like to get involved, fill out and submit our volunteer form.
We’ll follow up with you to match you with an opportunity!
Registry Patient Advisory Group

The PKD Foundation Registry Patient Advisory Group (PAG) is a group of patients, caregivers, and other stakeholders providing input and guidance on the ADPKD Registry.
 

The PAG will serve as a working group under a larger steering committee, meeting quarterly to ensure that the Registry considers the needs, preferences, and real-world experiences of patients.
 

If interested in serving on this panel, please email registry@pkdcure.org.

Read more about the ADPKD Registry
Stakeholder Reviewers

A PKD Foundation Stakeholder Reviewer reads and evaluates research study applications for relevance to the PKD community’s needs and concerns, actively participating in peer review panel discussions.
 

We welcome applications from patients, caregivers, and parents of children with PKD who are passionate and committed to serving as reviewers for the PKD Foundation.
 

We’re seeking reviewers with diverse perspectives to help us identify high-quality, patient-centered research applications.

Become a Stakeholder Reviewer
PKD Foundation Volunteer Code of Conduct

Volunteers shall act honestly and ethically while in the performance of their volunteer duties. Volunteers shall treat all PKD Foundation employees, volunteers, and community members with respect, courtesy, and dignity. Volunteers shall not discriminate and shall be respectful of ethnic, national, and cultural differences.