You’re Worth It

Our neighbor is an avid cyclist and has completed a 100-mile run. I asked him if he has ever woken up on the morning of an endurance event feeling tired,...

Helpless vs. Burden

I strongly connected with the story of a butterfly cocoon that was shared in Robin Roberts’ memoir, ‘Everybody’s Got Something.’ “Someone sees the movement of the butterfly pressing against the...

The Tides of Life

As the tide washed in, the Dutch Tulip Man faced the ocean: “Conjoiner rejoinder poisoner concealer revelator. Look at it, rising up and rising down, taking everything with it.” “What’s...

Keep Plugging Away

“You woke up. You got out of bed. You got dressed. These may seem like small things. But when you’re living with a chronic illness, these small things may take...

Punt PKD

There have been numerous times throughout my PKD journey when I have been in a medical facility, such as the emergency room, and have had to explain what polycystic kidney...