Patient Journey

Pre-diagnosis and caregivingWe know how important community is and have resources and programs to connect you with other PKD patients.
Since 2000, the Walk for PKD has raised awareness and funds for PKD research, bringing together patients, loved ones, and PKD experts. These annual events give hope to many newly diagnosed patients.Our HOPE Line (844-PKD-HOPE) is staffed by a support team ready to answer your questions and connect you to helpful resources.
Our Advocacy Champion Network empowers community members to advance legislative priorities benefiting PKD patients.We work with volunteers to ensure no one faces PKD alone. Peer mentors and volunteers in 50+ communities across the U.S. provide support and organize various events.DiagnosisReceiving your PKD diagnosis can be overwhelming. We have the tools and answers you need.
PKD Connect is your premiere source for patient education, support, and connection.Our peer mentors are carefully selected and trained to help patients and caregivers manage living with PKD.The Find a PKD Clinic tool helps you find nearby clinics and filter by specialties and services, ensuring you find the best medical care possible.Disease
managementWe partner with PKD experts to provide relevant education and connect patients to important research.
Featuring expert-presented education and research updates, the PKD Connect Conference brings together PKD patients, caregivers, physicians, and researchers.To develop drugs and therapies for PKD, patients are needed for clinical studies. We share study information with you through our website and email alerts.
Our magazine, PKD Life, highlights patient stories and includes nutrition, lifestyle, and research updates.
The first nationwide patient registry for individuals with ADPKD, our patient-powered ADPKD Registry connects patients to relevant research and helps us better understand the patient experience.TreatmentOur vision is to #endPKD. Until then, we will continue investing in research that leads to treatments and a higher quality of life for patients.[et_pb_toggle title=”PKDOC” open_toggle_text_color=”#25205d” open_toggle_background_color=”#ffffff” closed_toggle_text_color=”#25205d” closed_toggle_background_color=”rgba(255,255,255,0.75)” icon_color=”#a3cf5e” use_icon_font_size=”on” admin_label=”PKDOC” _builder_version=”4.4.2″ title_text_color=”#25205d” title_level=”h4″ title_font=”Montserrat|800|||||||” title_font_size=”21px” closed_title_font=”Montserrat|600|||||||” closed_title_text_align=”left” closed_title_font_size=”21px” body_font=”Montserrat||||||||” body_text_color=”#25205d” body_font_size=”16px” body_line_height=”1.5em” body_ul_type=”square” body_ul_item_indent=”30px” body_ol_position=”outside” body_ol_item_indent=”30px” body_link_font=”Montserrat|700|||||||” body_link_text_color=”#00778b” body_link_font_size=”16px” body_link_line_height=”1.5em” body_ul_text_color=”#25205d” body_ul_line_height=”1.5em” body_ol_text_align=”left” body_ol_text_col