resources
Scientific Conference: Patient Perspective Webinar
30 January 2025
Join us for a unique opportunity to hear from Ron Perrone, M.D., and Anne Walsh, ADPKD patient and PKD Foundation volunteer, about the value of including the patient voice in research. Anne will share her experience navigating the 2024 American Society of Nephrology (ASN) Conference, including interacting with PKD researchers and bringing the patient perspective to scientific discovery and clinical advancements-focused events. Dr. Perrone will highlight the significance and critical role events like the ASN Conference play in advancing patient-centered care for PKD patients. Highlights from the conference’s poster session and notable studies will also be discussed. Join us to learn more about the patient perspective and the unique experience of engaging in scientific forums to build stronger connections between the PKD community and researchers.
Related Resources
- 2026
- ADPKD
- Education
- Newly Diagnosed
- PKD
- PKD Parents
- The Basics of PKD
- Webinar
- 2026
- ARPKD
- Education
- Newly Diagnosed
- PKD
- PKD Parents
- PKDCON
- The Basics of PKD
- Webinar
- 2026
- ADPKD
- ARPKD
- Caregivers
- Children
- Clinical Trials
- Complications
- Conference
- Diagnosis
- Diet
- Drug Therapy and Treatments
- Education
- End Stage Kidney Disease
- genetic testing
- Kidney transplant
- Living Post-Transplant
- Living with PKD
- Management
- Newly Diagnosed
- Nutrition
- PKD
- PKDCON
- Polycystic Liver Disease
- Pregnancy
- Progression
- Research
- Tolvaptan
- Transplantation
- Webinar
- Young Children
- 2025
- ADPKD
- ADPKD Registry
- Clinical Trials
- Drug Therapy and Treatments
- 2025
- ADPKD
- Webinar
- Advocacy
- Clinical Trials
- Conference
- Drug Therapy and Treatments
- PKD News
- Research
- TKV
- Total kidney volume
- ADPKD
- Drug Therapy and Treatments
- Management
- Podcast
- Tolvaptan
- Treatment
- 2025
- ADPKD
- Complications
- Living with PKD
- Polycystic Liver Disease
- Webinar