Community Volunteer Roles

PKD Connect Ambassadors PKD Connect Ambassadors play a vital role in providing local support for PKD communities across the United States and serve as the frontline for individuals new to the PKD ...

View
Volunteer Resources Hub

PKD Connect Ambassadors PKD Connect Ambassadors play a vital role in providing local support for PKD communities across the United States and serve as the frontline for individuals new to the PKD ...

View
Elizabeth

8.5 years ago, there were no treatments available for PKD. Now there is an approved drug to help slow disease progression. We are still fighting for a cure— that’s the ...

View
The Blaylock Family

Our team has enjoyed participating in the Kansas City Walk for PKD for 20 years. It has been very uplifting to realize you are not alone in this fight.

View
Linda Halstead

I walk and fundraise every year to support those who are praying, as I am, for promising research and eventually a cure.

View
Kidney Fight Trivia Night 2025

What's better than trivia night? A trivia night benefitting the PKD community!

View
What are volunteer grant programs?

Volunteer grant programs (also referred to as volunteer matching programs or “Dollars for Doers”) are corporate giving programs in which companies provide monetary donations to organizations where employees volunteer regularly. ...

View
What kind of exercise is best?

There is no one best kind of exercise. The key is to find an activity that is comfortable for you and you enjoy doing. Generally, PKD patients can do any ...

View
PKD Awareness Day

On September 4th every year, we recognize PKD Awareness Day to spread the word about polycystic kidney disease (PKD). Will you raise your voice with us?

View
Lisa Baxter

I got PKD from my father. I have six siblings on dialysis, two aunts, an uncle, and a mother-in-law. I travel all around the world sharing my story and giving ...

View