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The Stewardship Ambassador is vital in helping the PKDF share gratitude with donors who support the foundation through monetary donations. The Stewardship Ambassador will thank donors through various types of communication; phone calls, emails, hand-written notes, etc.

PKD Connect Interpreters will translate emails and assist with returning phone calls on an as-needed basis. Volunteers will connect individuals with PKD Foundation programs and services as appropriate and assists with building a sense of community for non-English speaking patients and families.

The Outreach Ambassadors Program is meant to build new bridges between the PKD Foundation and previously underserved communities. The Outreach Ambassadors Program will also guide communities of color through the Foundation’s resources on disease management, treatment options, and navigating health care systems.

The PKD Foundation Community Reaction Panel provides feedback on pre-determined topics of interest to Industry Alliance partners and PKD Foundation programs and services. The panel consists of patients and caregivers with varied experiences across the continuum of disease progression and includes experience with ADPKD and ARPKD.

Published on March 31, 2022 | After a diagnosis, it’s natural to have questions about polycystic kidney disease. How will it affect your daily life? Is there a treatment? How ...

My name is Patricia Mittlestadt and I am 65 years young and on the kidney transplant waiting list. My dream is to receive a kidney before I go on dialysis, ...

Published on February 22, 2022 | In living with PKD, a healthy diet and regular exercise are important aspects in managing PKD. But there’s one factor that can make daily ...

The Advocacy Champion Network (ACN) is vital to raising awareness of PKD and increasing research dollars to bring treatments and therapies to patients and to provide the best care for those who are reliant on dialysis or a kidney transplant to survive.

The Fundraising Ambassador plays an important role in the local PKD community by identifying local fundraising opportunities and organizing the event. With the support from PKD Foundation staff, your contribution will facilitate fundraising that supports the mission of the PKD Foundation.

PKD Connect Peer Mentors provide resources, guidance, motivation, and emotional support to people impacted by PKD.