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Community Meetings
A community meeting is an opportunity for local patients and families to gather in support of each other and to learn valuable information to help them manage living with PKD.
Community meetings can include activities such as:
- Review and discussion of an existing PKD Foundation patient education resource, such as a webinar recording. Check out our resource library to view all patient resources.
- Gathering to support one another, share individual experiences and share PKD Foundation resources to help manage PKD.
- Invite a local expert to present a topic that complements PKD Foundation patient education.
Are you ready to plan a community meeting? Complete our event submission form. And a member of the Community Engagement team will follow up with next steps.
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Community Meetings - Social Media Templates
As you plan your community meeting, here are some resources to assist you with social media posts.
Community Meetings Save the Date
Mark your calendar! Our next community meeting has been scheduled for DATE and TIME. This is your chance to connect, share, and learn more about what’s going on in the YOUR COMMUNITY Community. We hope to see you there! Register at LINK.
Download “Upcoming Community Meeting” Post
Community Meetings RSVP
We are looking forward to our upcoming community meeting on DATE and TIME. Meet and connect with others in the PKD community in YOUR COMMUNITY. If you plan on attending, remember to register at LINK to secure your spot.
Download “Community Meeting Next Week” Post
Download “Community Meeting Tomorrow” Post
Community Meetings Thank You
Thank you, everyone, who attended our last meeting. Let us know if you enjoyed this or have any feedback in the comments below.
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New PKD Connect Ambassador Onboarding Training Series
Are you a new PKD Connect Ambassador or do you need a refresher? If so, this is for you. Check out the training sessions below and let me know if you have any questions! Email Nicole at nicoleh@pkdcure.org
Welcome to PKDF! – Information for PKD Foundation Volunteers
Communication Tools Training
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PKD Connect Ambassador Continuing Training Series
Communication Tools Training
- Communication Tools – Office 365 Recording
- Communication Tools _ Office 365 Slides
- Please submit volunteer hours for participating in this training session.
- Communication Tools – Microsoft Teams Recording
- Communication Tools – Microsoft Teams Slides
- Please submit volunteer hours for participating in this training session.
Leading a PKD Community
Please submit volunteer hours for participating in this training session.
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All New! Let's Login Quick Video Series
Sometimes it’s just hard to remember how to login to all the places you need to be. Let’s Login Quick Video series can help.
- Where is my volunteer email account and how do I login?
- What is One Drive and how do I get to it?
- How do I login to Teams?
- How do I start a Teams meeting?
Need help accessing something else? Let us know!
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Volunteer Hours
Community Meetings
After each Community Meeting, the PKD Connect Ambassador will receive a unique link to submit volunteer hours associated with planning that meeting. Please complete the form by clicking on the link provided. You will receive a reminder after each Community Meeting.
If you have questions about this process, please contact your PKDF staff lead or email Nicole at nicoleh@pkdcure.org
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Growing Your Local Community
Join us for an engaging volunteer training session designed to help you expand and strengthen your local PKD community. We’ll cover key topics, including effective community engagement strategies, communication best practices, press training, and leveraging social media to raise awareness.
Learn how to connect with others, share valuable resources, and create a thriving support network. Whether you’re a new or experienced volunteer, this session will provide practical tools and insights to help you make a greater impact in your local community.
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Inform & Engage: How to Host an Educational Meeting
Whether you are planning your first educational meeting or you have planned multiple meetings for your community, planning an educational meeting can feel overwhelming. This training will provide you with a clear roadmap to successfully organize and host an impactful event.
We’ll walk through the key steps of planning, from selecting a relevant topic to promoting the event and engaging with Centers of Excellence. You’ll also learn about our speaker process and key internal processes to support your event, including how we use the calendar to manage invitations for volunteers and speakers. Finally, we’ll highlight a few successful meetings and share strategies to maximize impact.
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Leading with a Purpose: Hosting a Successful Support Meeting
Support groups provide a vital space for patients and families living with PKD to connect, share experiences, and find encouragement. Let’s discuss your role as a peer facilitator and how to create a welcoming, structured and supportive environment.
PKD Volunteer Team
Who has the best ideas for success? You, of course!
Join our new Team PKD Volunteer Team Facebook closed group page and connect with all of our communities, share your ideas, successes and receive news and information from staff. PKD Volunteer Team is for official PKD Foundation volunteers only.