The mission of the PKD Foundation Chapters (Chapters) is to assist the PKD Foundation (Foundation) on a local level in promoting critical programs of research to find a cure for PKD and improve the care and treatment of those it affects. Chapters are facilitated by volunteers who want to make a difference in the fight to end PKD. Chapter activities focus on three key areas.
Educate patients and family members about PKD by planning educational meetings or seminars. Promote educational opportunities offered by the Foundation in the local community.
Identify individuals, corporations and foundations interested in financially supporting the Foundation.
Assist patients by locating resources available in the local community. Provide opportunities for PKD patients and their families to connect and support each other.
Chapter Leadership Structure
The following are key volunteer positions for a Chapter. The Chapter Coordinator can seek volunteers through Chapter web pages, social media outlets, educational and fundraising activities and local community resources. Chapter leaders often come from the most supportive and active members and volunteers whose interests and talents align with the needs of the Chapter.
Current Open Chapter Coordinator Positions:
If interested in learning more about these positions, please contact Cindy LeBlanc, Chapter Relations Manager, email@example.com.
Current Open Walk Coordinator Positions:
- Northeast Ohio
Current Open Walk Co-Coordinator Positions:
If interested in learning more about these positions, please contact Sue Full, Walk for PKD Manager, firstname.lastname@example.org.
The Chapter Coordinator represents the Foundation in the local community and acts as a liaison between the Foundation and local constituents. This volunteer position focuses on education, advocacy, support and fundraising efforts including supporting the Walk, Education and Fundraising Coordinators, monitoring the chapter email account, recruiting volunteers and submitting and implementing an annual plan including financial goals for the Chapter’s activities. This position could take approximately 8 hours per month; attendance at the annual training meeting in Kansas City is required as well as a 2 year commitment.
The Education Coordinator, working with the Chapter Coordinator, is responsible for providing opportunities for education and support for chapter members. Responsibilities include organizing logistics for educational meetings or seminars, contacting and securing speakers and topics for educational events, providing necessary information to speakers, leading support groups and providing information to those affected by PKD in your local community. The Education Coordinator will also work with the Chapter Coordinator to ensure that chapter members are aware of legislative priorities.
The Fundraising Coordinator supports the chapter’s fundraising activities. This includes soliciting and securing monetary sponsorships and in kind donations for Chapter events. The position oversees event budgets and, working with the Chapter Coordinator, helps ensure that the Chapter will meet its financial goals.
The Walk Coordinator, working in conjunction with the Chapter Coordinator and Walk committee, is responsible for planning and executing the local Walk for PKD to raise funds and enhance awareness of PKD and the Foundation. This is a key role that requires some background in hosting fund raising events.This position could require 20 hours a month during walk season; attendance at the annual training meeting in Kansas City is required as well as a 2 year commitment.
Please email email@example.com for more information on any of the roles. Thank you!