Welcome to the



With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

2024 Chicago
Walk for PKD

Sunday, September 22

Berens Park, the Hub
Elmhurst, IL

Registration/site opens: 10 a.m.

Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at walkforpkd.org/chicago.

If you have questions, email us at chicagowalk@pkdcure.org.



Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org.

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Join the team!

PKD Connect Ambassador

We are looking for a volunteer to take on the PKD Connect Ambassador role for our Chicago Community. If you are interested in learning more, please reach out to us at volunteers@pkdcure.org.

Theresa Raguso

Walk for PKD Ambassador

Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!

Hi, I’m Theresa and I am the volunteer Chicago Walk Ambassador…again!  I have been involved with the ChicagoWalk – be it as a walker, volunteer or the coordinator- for just about 20 years, having attended my first Walk for PKD in 2005.  Team Sal’s Pals came to be a few years later and in 2014, I began organizing the Chicago Walk.  I am excited to be back volunteering with the foundation after a couple of years off and ready to work with my Chicago and PKD Community to #EndPKD!

Page last updated February 2024