Welcome to the



With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Walk Volunteer Needed!

We are in search of a key volunteer to help lead efforts for the Chicago Walk for PKD. This volunteer will partner with our current Walk volunteer. This role is supported by an existing group of veteran volunteers who share the responsibility of planning and executing the event. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please reach out.

Email us at walkforpkd@pkdcure.org with the subject line: Chicago Walk Volunteer Interest and we would be happy to talk with you!

abbreviated lockup of PKD Connect Conference 2023 (PKDCON 2023) with PKD Foundation logo and illustration of Denver Colorado mountains

Registration for PKD Connect Conference (PKDCON) is open!

PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Kristin Wood

PKD Connect Ambassador

I’m excited to serve as the PKD Connect Ambassador for the Chicago Community.  Myself and many other family members have PKD.  My grandmother passed away from complications after being on dialysis for a number of years.  My mother received her first transplant in 1994 which lasted for 25 years.  Once her kidney failed, she was on dialysis in-center and then did home dialysis before receiving her second transplant in 2021.  Through this role, I look forward to connecting with other PKD patients and caregivers to empower those facing this disease with resources, support, and encouragement, as well as further the PKD Foundation’s initiatives to #endPDK once and for all. 

Nicole Shehan

Walk for PKD Ambassador

This is my third year leading the Walk for the Chicago Walk for PKD.

Growing up I watched my aunts and uncles suffer from PKD and accept the treatment of dialysis, restricted diets and complications that come along with this progressive disease. In 2006, my dad passed away from complications of PKD and it was then that I knew I wanted to do something more to raise awareness and help find a cure. I signed up as a team captain and walked every year with my family, those that are living with PKD and in honor of those who have passed. Over the past several years, the walk has provided my family a mission and a common goal to end this disease for future generations. We have met other families in the Walk for PKD community with similar stories, the Walk has given me HOPE, and I am determined to be part of the CURE. My motto has been based on a quote that I once read by Margaret Mead: “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.”

Page last updated December 2022

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