Welcome to the

Chicago

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Walk Volunteer Needed!

We are in search of a key volunteer to help lead efforts for the Chicago Walk for PKD. This volunteer will partner with our current Walk volunteer. This role is supported by an existing group of veteran volunteers who share the responsibility of planning and executing the event. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please reach out.

Email us at walkforpkd@pkdcure.org with the subject line: Chicago Walk Volunteer Interest and we would be happy to talk with you!

Get Involved

Are you interested in helping us grow the Chicago Community?

We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved. 

If you have questions, please email us at volunteers@pkdcure.org

The 2022 Walk for PKD launches in May. Watch the Walk for PKD webpage for more updates. We look forward to you joining us for an exciting year of fundraising to support PKD research. A cure is our finish line!

The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.

Virtual and free to attend this year, PKDCON 2022 will provide a rich educational experience, meaningful interactions with other participants, and engaging Q&A sessions with faculty.

Join us for our second virtual conference June 24 – 25.

Last year, 1,600 attendees from over 40 countries joined us for our two-day virtual event. Register today to learn alongside PKD community members just like you. Register now!

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

PKD Connect Ambassador

Interested in joining our Chicago volunteer team? Complete our Become a Volunteer form or email us for more information. 

Nicole Shehan

Walk for PKD Ambassador

This is my third year leading the Walk for the Chicago Walk for PKD.

Growing up I watched my aunts and uncles suffer from PKD and accept the treatment of dialysis, restricted diets and complications that come along with this progressive disease. In 2006, my dad passed away from complications of PKD and it was then that I knew I wanted to do something more to raise awareness and help find a cure. I signed up as a team captain and walked every year with my family, those that are living with PKD and in honor of those who have passed. Over the past several years, the walk has provided my family a mission and a common goal to end this disease for future generations. We have met other families in the Walk for PKD community with similar stories, the Walk has given me HOPE, and I am determined to be part of the CURE. My motto has been based on a quote that I once read by Margaret Mead: “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.”

Page last updated March 2022

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