Welcome to the



With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Walk for PKD

Sunday, September 24

New location!
Berens Park, the Hub
Elmhurst, IL

Registration/site opens: 10 a.m.

Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at walkforpkd.org/chicago.

If you have questions, email us at chicagowalk@pkdcure.org.



Thank you to everyone who attended and supported the 2023 Walk for PKD. Fundraising remains open until Dec. 31. Help us reach our goal by donating to your local Walk for PKD  today. A cure is our finish line!

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Join the team!

PKD Connect Ambassador

We are looking for a volunteer to take on the PKD Connect Ambassador role for our Chicago Community. If you are interested in learning more, please reach out to us at volunteers@pkdcure.org.

Theresa Raguso

Walk for PKD Ambassador

Hi, I’m Theresa and I am the volunteer Chicago Walk Ambassador…again!  I have been involved with the ChicagoWalk – be it as a walker, volunteer or the coordinator- for just about 20 years, having attended my first Walk for PKD in 2005.  Team Sal’s Pals came to be a few years later and in 2014, I began organizing the Chicago Walk.  I am excited to be back volunteering with the foundation after a couple of years off and ready to work with my Chicago and PKD Community to #EndPKD!

Page last updated June 2023