Welcome to the

Las Vegas

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Get Involved

We are in search of a key volunteer to lead efforts for the Las Vegas Walk for PKD. This volunteer leader role is currently vacant and the continued success of the Las Vegas Walk for PKD relies on leadership in this role and in your area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please reach out.

 

Email us at walkforpkd@pkdcure.org with the subject line Las Vegas Walk Volunteer Interest and we would be happy to talk with you!

The 2022 Walk for PKD launches in May. Watch the Walk for PKD webpage for more updates. We look forward to you joining us for an exciting year of fundraising to support PKD research. A cure is our finish line!

The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.

Virtual and free to attend this year, PKDCON 2022 will provide a rich educational experience, meaningful interactions with other participants, and engaging Q&A sessions with faculty.

Join us for our second virtual conference June 24 – 25.

Last year, 1,600 attendees from over 40 countries joined us for our two-day virtual event. Register today to learn alongside PKD community members just like you. Register now!

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Cia’rra Craig

Education Coordinator

I was not familiar with PKD until my daughter Kendall, now 3, was diagnosed with ARPKD in utero. With the amazing support I received from the connections I made through the PKD Foundation, I was able to stay strong, positive and hopeful during my pregnancy and thereafter. My family knows you can never prepare for something like this, and not every story or outcome is the same, so we continue to take it day by day. Being able to open up, get advice, ask questions and get suggestions about doctors or certain medications has been so helpful to our family over the years. Finding the support I did through the people I met in the PKD community really kept me going and I wanted to be a part of that support and spreading awareness about PKD with others who were just as lost as I was. I love my daughter with every fiber of my being and I want her to have every opportunity available to her. I’ll do everything in my power to help find a cure and #ENDPKD. I look forward to being the Education Coordinator and being a part of that support for our Las Vegas Chapter.

Page last updated March 2022

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