Welcome to the
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Walk for PKD
Saturday, October 14
Registration/site opens: 10 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
If you have questions, email us at firstname.lastname@example.org.
Are you interested in helping us grow the Connecticut Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at email@example.com.
Thank you to everyone who attended and supported the 2023 Walk for PKD. Fundraising remains open until Dec. 31. Help us reach our goal by donating to your local Walk for PKD today. A cure is our finish line!
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
PKD Connect Ambassador
I am a Connecticut resident, a first generation immigrant, a mother of two wonderful kids, a wife to a great husband and a brand marketeer. Seven years ago, my family and I faced a great challenge when we found out my husband had reached full renal failure. Thanks to the generosity of a dear friend from work, my husband has been able to enjoy amazing memories with my children, now seven
and fourteen years old. Our journey continues as my sister in law manages dialysis and a search for a donor.
Volunteering at the PKDF is my way of paying it forward. To the healthcare professionals, family, friends, work colleagues and strangers who heard about our situation, I will always be grateful for their prayers, words of encouragement, expertise and support. My goal is to share our experience and support other families who are going through a similar experience and to support the efforts to
find a cure.
Page last updated July 2023