Volunteer resources
Welcome, volunteers!
You are the heart of the PKD Foundation.
The Volunteer resource pages give you all the tools you need in one place. You’ll find essential information such as updates from the PKD Foundation, forms and documents, upcoming training opportunities, marketing materials, and more!
Volunteer Connection Calls
Volunteer Connection Calls keep our volunteers in the know!
Join PKD Foundation staff and your fellow volunteers from across the country via video conference to celebrate volunteer accomplishments and your commitment to the PKD Foundation.
Expect to hear updates from PKD Foundation staff as they share current department updates and a look ahead at upcoming projects.
Tuesday, Feb. 20, 2024 7:00 – 8 pm CT
Watch the recording | Review the slides
Can’t find something you need?
Hopefully, everything you need can be found on this page or the supporting pages, but if something is missing, please email volunteers@pkdcure.org and we will make every effort to get the information up and available to everyone. Thanks!
Volunteer Team Facebook
Who has the best ideas for success? You, of course!
Join our PKD Volunteer Team Facebook closed group page and connect with all of our volunteers, share your ideas, successes and receive news and information from staff. PKD Volunteer Team is for official PKD Foundation volunteers only.
PKDF Acronyms
PKDF Acronym Cheat Sheet!
Have you run across acronyms and weren’t sure what they stand for? We have a cheat sheet for you!
Role Specific Resources
Contact us
Nicole Harr
Sr. Director of Community Engagement
nicoleh@pkdcure.org
Lavonne Nichols
Community Engagement Strategist
lavonnen@pkdcure.org
PKD Volunteer Team
Who has the best ideas for success? You, of course!
Join our PKD Volunteer Team Facebook closed group page and connect with all of our volunteers, share your ideas, successes and receive news and information from staff. PKD Volunteer Team is for official PKD Foundation volunteers only.
Walk for PKD Ambassadors
Walk Ambassadors are responsible for planning and executing their local Walk for PKD with support from PKD Foundation staff.
PKD Connect Peer Mentors
PKD Connect Peer Mentors provide resources, guidance, motivation, and emotional support to an individual impacted by PKD.
Peer Ambassadors
Peer Ambassadors build new bridges between the PKD Foundation and previously underserved communities and guide communities of color through the Foundation’s resources on disease management, treatment options, and navigating health care systems.
PKD Connect Ambassadors
PKD Connect Ambassadors provide local support for PKD communities across the United States and serve as the frontline for individuals new to the PKD Foundation.
Fundraising Ambassador
The Fundraising Ambassador identifies local fundraising opportunities and facilitates fundraising that supports the mission of the PKD Foundation.
PKD Connect Interpreters
PKD Connect Interpreters will translate emails and assist with returning phone calls on an as-needed basis. Volunteers will connect individuals with PKD Foundation programs and services as appropriate and assists with building a sense of community for non-English speaking patients and families.
Advocacy Champions
The Advocacy Champion Network raises awareness of PKD and helps further legislation, regulation, and federal funding opportunities to improve the lives of everyone in the PKD community.
Community Reaction Panel
The Community Reaction Panel provides feedback to PKDF and consists of patients and caregivers with varied experiences across the continuum of disease progression and includes experience with ADPKD and ARPKD.
Stewardship Ambassador
The Stewardship Ambassador is vital in helping the PKDF share gratitude with donors who support the foundation through monetary donations. The Stewardship Ambassador will thank donors through various types of communication; phone calls, emails, hand-written notes, etc.
Page last updated October 2024
