by Sydney Johnston | Jun 8, 2022 | Advocacy
Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN). The ACN connects advocates to their local legislators, helping further PKD-centered legislation. Each member has their own unique path to advocacy....
by Sydney Johnston | May 31, 2022 | Education
Published on May 31, 2022 | In the early 2000s, the PKD Connect Conference originated as the PKD Foundation National Convention. This educational event brings together every part of the PKD community to provide information, research, tools, resources, and networking...
by Sydney Johnston | May 24, 2022 | Awareness, Education
Published on May 24, 2022 | May is Mental Health Awareness Month. With chronic illnesses, like ARPKD and ADPKD, mental health is an important factor of your overall care plan. Whether you’re a patient with PKD, caregiver, or family member, taking charge of your...
by Sydney Johnston | May 17, 2022 | Research
Published on May 17, 2022 | Each year, tens of thousands of patients need organ transplants. However, the supply of available organs is much smaller than the demand. In order to combat the tremendous shortage of organs available for transplantation, researchers are...
by Sydney Johnston | May 11, 2022 | Advocacy
Published on May 11, 2022 | On April 27, The PKD Foundation hosted Virtual Advocacy Day. This free event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the...
