by Sydney Johnston | Apr 26, 2022 | Transplantation
Published on April 26, 2022 | For 30 years, Klee Kleber and Craig Gile have been friends. Like the estimated 600,000 adults in the United States, Klee has autosomal dominant polycystic kidney disease (ADPKD). And Craig’s remained a steadfast friend on his...
by Sydney Johnston | Apr 19, 2022 | Awareness
Published on April 19, 2022 | When it comes to polycystic kidney disease, we all want to feel like we’re making a difference. Some of join clinical trials, others volunteer with the Walk for PKD or serve as peer mentors. But Glenn Frommer had something big in...
by Sydney Johnston | Apr 12, 2022 | Awareness
Published on April 12, 2022 | Join us in celebrating National Volunteer Week 2022 on April 17-23! Volunteers are the heart of the PKD community, ensuring no one faces polycystic kidney disease alone. In 1987, the first local volunteer community was formed. Since then,...
by Sydney Johnston | Apr 5, 2022 | Advocacy
Published on April 5, 2022 | Launched in 2020, the Advocacy Champions Network (ACN) is an exclusive community of patients, family members, and clinicians dedicated to improving the lives of people living with PKD. The inaugural ACN class consisted of 36 members from...
by Sydney Johnston | Mar 31, 2022 | Education
Published on March 31, 2022 | After a diagnosis, it’s natural to have questions about polycystic kidney disease. How will it affect your daily life? Is there a treatment? How do I manage PKD complications? Finding the right healthcare team can make things...
