by Sydney Johnston | Jun 15, 2021 | Advocacy
Published on June 15, 2021 | We’ve seen firsthand the power of collaboration to enact meaningful change in health care. By pulling together institutions and advocates, we can transform policy for kidney patients and living donors. During the last Congress, the PKD...
by Sydney Johnston | Jun 10, 2021 | ADPKD Registry, Research
Published on June 8, 2021 | At the PKD Foundation, creating a world free of PKD is our ultimate goal. In order to make that goal a reality, more PKD research is needed. Over the past 40 years, we’ve evolved from not only a funder, but a doer of research....
by Sydney Johnston | Jun 2, 2021 | PKD Connect, PKD Foundation News
Published on June 1, 2021 | In a few weeks, the PKD Foundation will host its biggest educational event, PKD Connect Conference. Taking place June 25–26, 2021, PKDCON offers a unique opportunity for members of the PKD community to connect while providing educational...
by Sydney Johnston | May 25, 2021 | Research
Published May 25, 2021 | At the PKD Foundation, funding PKD research is one of our primary functions. Starting last year, caregiver or patient stakeholders joined the research grant review panel to evaluate applications from the patient perspective. We spoke to two of...
by Sydney Johnston | May 18, 2021 | Recipes
Published on May 18, 2021 | Days are getting longer, temperatures are getting warmer. Spring is in full bloom. With this nicer weather, many of us are looking to spend more time outdoors, including for dinner. Nutrition is always top-of-mind when it comes to living...
