by Sydney Johnston | Oct 20, 2020 | Advocacy, Awareness
Published October 20, 2020 | More than six months after state-level lockdowns began due to the COVID-19 pandemic, it feels as though advocacy organizations everywhere have adapted to the new, virtual forms of connection that are necessary in these times. Likewise, the...
by Sydney Johnston | Oct 6, 2020 | Uncategorized
Published October 6, 2020 Karel Liem Jr., M.D., Ph.D., Yale University How did you first get involved in PKD research? Karel: My interest in PKD research developed from my genetic studies on the role of the primary cilium in developmental signaling. The cilium...
by Sydney Johnston | Sep 29, 2020 | Awareness, Walk for PKD
In two weeks, members of the PKD community will unite for a 10-day virtual Walk for PKD. Months of planning, fundraising, and organizing will culminate in the nation’s largest public awareness event for PKD. During the 10 day event, we’ll bring awareness to PKD,...
by Sydney Johnston | Sep 22, 2020 | Caregivers, Education
Published September 22, 2020 | When your loved one has PKD but lives hundreds of miles away or more, staying involved as a PKD caregiver can be trying. Mary Perry, of Antioch, Illinois, learned that firsthand when her son Michael was living in South Carolina and was...
by Sydney Johnston | Sep 15, 2020 | Awareness, Transplantation
Published September 15, 2020 | With an ADPKD diagnosis, there’s more than a 50% chance a patient will develop kidney failure by age 50. Dialysis or a kidney transplant is the only treatment option once a person has kidney failure. Choosing to pursue a...
