Advocacy
Awareness
Education
Research
ACN Spotlight: Lainie Esquivel
Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN). The ACN connects advocates to their local legislators, helping further PKD-centered legislation. Each member has their own unique path to advocacy....
Virtual Advocacy Day 2022 Recap
Published on May 11, 2022 | On April 27, The PKD Foundation hosted Virtual Advocacy Day. This free event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for...
ACN Spotlight: Alix Piccirilli
Published on April 5, 2022 | Launched in 2020, the Advocacy Champions Network (ACN) is an exclusive community of patients, family members, and clinicians dedicated to improving the lives of people living with PKD. The inaugural ACN class consisted of 36 members...
Register for PKDF Virtual Advocacy Day 2022
Published on March 22, 2022 | The PKD Foundation is excited to announce that registration is now open for PKDF Virtual Advocacy Day 2022 taking place on Wednesday, April 27! As the only organization in the U.S. solely dedicated to finding treatments and a cure for...
PKDF Launches Peer Ambassadors Program
Published on February 1, 2022 | Recruitment is now open for the PKD Foundation Peer Ambassadors Program! Created to build new bridges between the Foundation and previously underserved communities, the goal of the Peer Ambassadors Program is to engage new audiences...
Inaugural ACN Awards Ceremony
BE Published on December 21, 2021 | Recently, we hosted our inaugural Advocacy Champions Network (ACN) Awards Ceremony. Together, we honored and celebrated PKD advocates who've dedicated significant time to improving the lives of people living with PKD....
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Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN).Read More -
Published on May 11, 2022 | On April 27, The PKD Foundation hosted Virtual Advocacy Day. This free event wasRead More -
Published on April 5, 2022 | Launched in 2020, the Advocacy Champions Network (ACN) is an exclusive community of patients,Read More -
Published on March 22, 2022 | The PKD Foundation is excited to announce that registration is now open for PKDFRead More -
Published on February 1, 2022 | Recruitment is now open for the PKD Foundation Peer Ambassadors Program! Created to build newRead More -
BE Published on December 21, 2021 | Recently, we hosted our inaugural Advocacy Champions Network (ACN) Awards Ceremony. Together, weRead More