Advocacy
Awareness
Education
Research
New Legislation Offers $5,000 Tax Credit to Living Organ Donors
Published on November 1, 2023 | Today, Representatives Joe Wilson (R-SC-02) and Jerrold Nadler (D-NY-12) introduced the Living Organ Donor Tax Credit Act of 2023. If it passes, this legislation would provide a one-time, reimbursable tax credit of up to $5,000 to...
Securing the U.S. Organ Procurement and Transplantation Network Act Becomes Law
Published on October 3, 2023 | On Friday, September 22, 2023, President Biden signed the Securing the U.S. Organ Procurement and Transplantation Network Act (P.L. 118-140) into law. Through this law, we'll modernize and improve the Organ Procurement and...
How You Can Join the Advocacy Champions Network
Published on September 14, 2023 | Aside from funding research, one of the best ways to drive change in the PKD community is through advocacy. One way you can take part in PKD advocacy is by joining the Advocacy Champions Network (ACN). Applications are now open for...
3 Questions About Virtual Advocacy Day 2023
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023. Through virtual meetings, patients, friends, researchers, and PKD Foundation staff united to share our community's needs with Congress. For those...
Advocating on Virtual Advocacy Day with Tamara Walker
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. Advocacy plays an important part, too. Our Advocacy Champions Network connects PKD advocates to their local legislators, helping further PKD-centered legislation. In...
Share Your Voice on Virtual Advocacy Day 2023
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the...
-
Published on November 1, 2023 | Today, Representatives Joe Wilson (R-SC-02) and Jerrold Nadler (D-NY-12) introduced the Living Organ DonorRead More -
Published on October 3, 2023 | On Friday, September 22, 2023, President Biden signed the Securing the U.S. Organ ProcurementRead More -
Published on September 14, 2023 | Aside from funding research, one of the best ways to drive change in theRead More -
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023.Read More -
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. AdvocacyRead More -
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open toRead More