Advocacy
Awareness
Education
Research
Advocating on Virtual Advocacy Day with Tamara Walker
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. Advocacy plays an important part, too. Our Advocacy Champions Network connects PKD advocates to their local legislators, helping further PKD-centered legislation. In...
Share Your Voice on Virtual Advocacy Day 2023
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the...
2022 Advocacy Champion Network Awards
Published December 20, 2022 | At the ACN Awards, the PKD Foundation honors Members of Congress and Advocacy Champions who went above and beyond in 2022. These awardees were dedicated to raising awareness for our community and supporting policies to improve the...
Peer Ambassadors Raising Awareness and Inspiring Hope
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build new bridges between the Foundation and previously underserved communities. Recently, two Peer Ambassadors, Tatiana Mangwi and Alyssia Gomez,...
FY23 PKD Advocacy Update
Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations bill passed the Appropriations Committee. The bill report language includes a $5 million increase to support the chronic kidney disease...
ACN Spotlight: Lainie Esquivel
Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN). The ACN connects advocates to their local legislators, helping further PKD-centered legislation. Each member has their own unique path to advocacy....
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Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. AdvocacyRead More -
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open toRead More -
Published December 20, 2022 | At the ACN Awards, the PKD Foundation honors Members of Congress and Advocacy Champions whoRead More -
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build newRead More -
Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations billRead More -
Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN).Read More
