Advocacy
Awareness
Education
Research
Advocating on PKD Awareness Day
Published on August 31, 2021 | Every year, there's one day dedicated to educating friends, families, and communities about PKD—PKD Awareness Day. And September 4th is just around the corner. As we spread education and awareness, we create more opportunities to...
Protecting Living Donors: State Level Advancements
Published on June 15, 2021 | We’ve seen firsthand the power of collaboration to enact meaningful change in health care. By pulling together institutions and advocates, we can transform policy for kidney patients and living donors. During the last Congress, the PKD...
Addressing Racial Disparities in PKD Care
Published on May 11, 2021 | Among health experts, a consensus has developed that recognizes how implicit racial bias and social determinants affect all aspects of American health care. This includes a better awareness of how the circumstances in which people are...
The Living Donor Protection Act: What You Need to Know
Published on March 9, 2021 | More than ever, living donors are coming forward and generously volunteering to give the gift of life to hundreds of PKD patients across America. These living donors make up a vital portion of the kidney transplants performed in the...
Biomedical Research and Surveillance Research: What’s the Difference?
Published on January 5, 2020 | Research is a term often thrown around to describe everything from complex, controlled experiments to some light Google searching to find your favorite celebrity’s height. When we consider the value of medical research, though, it’s...
PKD Research Funding Included in 2021 U.S. Federal Spending Bills
Published November 17, 2020 | As we look to the new year, the PKD Foundation is excited to announce the inclusion of PKD research funding in the latest round of spending bills in Congress. On Tuesday, November 10, the Senate Appropriation Committee unveiled a set...
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Published on August 31, 2021 | Every year, there’s one day dedicated to educating friends, families, and communities about PKD—PKDRead More
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Published on June 15, 2021 | We’ve seen firsthand the power of collaboration to enact meaningful change in health care.Read More
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Published on May 11, 2021 | Among health experts, a consensus has developed that recognizes how implicit racial bias andRead More
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Published on March 9, 2021 | More than ever, living donors are coming forward and generously volunteering to give theRead More
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Published on January 5, 2020 | Research is a term often thrown around to describe everything from complex, controlled experimentsRead More
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Published November 17, 2020 | As we look to the new year, the PKD Foundation is excited to announce theRead More