Advocacy
Awareness
Education
Research
Introducing the Advocacy Champions Network
Published October 20, 2020 | More than six months after state-level lockdowns began due to the COVID-19 pandemic, it feels as though advocacy organizations everywhere have adapted to the new, virtual forms of connection that are necessary in these times. Likewise,...
5 Ways to Be a PKD Advocate for Your Loved One
Published June 2, 2020 When a loved one is diagnosed with PKD, it's important to learn how to be a PKD advocate. Glenna Frey knows exactly what that's like. Living in Whitehouse, Ohio, Glenna and her husband, Bob, often drive two hours from their home to the...
PKD research receives $14+ million in DoD funding
Published March 19, 2020. Written by Chris Rusconi, Chief Research Officer. Seven research grants with a primary focus on polycystic kidney disease totaling more than $12 million were funded in the fiscal year 2019 grant cycle by the Department of Defense’s Peer...
Executive order, new rules, and legislative priority updates — Part Four
Published Jan. 28, 2020 Written by Alexis Denny, Director of Government Affairs PART FOUR OF FOUR The effort to address the kidney health crisis in the U.S. started in July when President Trump issued the Advancing American Kidney Health Executive Order (EO). PKD...
CMS-proposed rule revises measures of OPO performance — Part Three
Published Jan. 21, 2020 Written by Alexis Denny, Director of Government Affairs PART THREE OF FOUR The effort to address the kidney health crisis in the U.S. started in July when President Trump issued the Advancing American Kidney Health Executive Order (EO). PKD...
HRSA issues rule to remove financial barriers to donation — Part Two
Published Jan. 14, 2020 Written by Alexis Denny, Director of Government Affairs PART TWO OF FOUR The effort to address the kidney health crisis in the U.S. started in July when President Trump issued the Advancing American Kidney Health Executive Order (EO). PKD...
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Published October 20, 2020 | More than six months after state-level lockdowns began due to the COVID-19 pandemic, it feelsRead More -
Published June 2, 2020 When a loved one is diagnosed with PKD, it’s important to learn how to be aRead More -
Published March 19, 2020. Written by Chris Rusconi, Chief Research Officer. Seven research grants with a primary focus on polycysticRead More -
Published Jan. 28, 2020 Written by Alexis Denny, Director of Government Affairs PART FOUR OF FOUR The effort to addressRead More
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Published Jan. 21, 2020 Written by Alexis Denny, Director of Government Affairs PART THREE OF FOUR The effort to address theRead More
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Published Jan. 14, 2020 Written by Alexis Denny, Director of Government Affairs PART TWO OF FOUR The effort to address theRead More
