PKD Connection Blog

Our volunteer Coordinators take on many important roles as part of their involvement with the Foundation: leaders, educators, fundraisers, caregivers and more. We recently caught up with Hudson Valley Chapter Coordinator Darien DaCosta, who has taken on all of these roles […]

Meet Gene Okun! Gene has PKD, and so did his father. Since his diagnosis, Gene’s kidneys have grown big (doctors say they may be the world’s largest) and dumb (functioning at only 18 percent). Currently in search of a living […]

I was diagnosed with PKD in October 2015. I am the fifth generation affected by PKD in my family. My great-great-grandmother, great-grandmother, grandfather, great-uncle and my mom all have or had PKD. I am the youngest member of my family […]

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