PKD Connection Blog

My paternal grandmother, Helen, is the first that we know of who had autosomal dominant polycystic kidney disease (ADPKD) in the family. We only figured it out when others in the family started to get diagnosed and we realized that […]

My name is Taylor Karlo, I’m 17 years old and I’m a senior at Olentangy Liberty High School in Powell, Ohio. I am also a volleyball player and I’m committed to the University of Saint Francis to continue my volleyball […]

Rob Herman and daughter Kaley

After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down […]

As many PKD patients know, PKD can often be accompanied by other ailments. Join guest blogger Rob Herman as he shares his and his family’s story about how PKD has impacted their lives: Though it has yet to be officially […]

Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids were no longer kids. I was 13 and wanting my own life, like any know-it-all teenager. My mom was getting “better,” […]

Our volunteer Coordinators take on many important roles as part of their involvement with the Foundation: leaders, educators, fundraisers, caregivers and more. We recently caught up with Hudson Valley Chapter Coordinator Darien DaCosta, who has taken on all of these roles […]