PKD Connection Blog

My name is Kate Callahan and I’m a 21-year-old college student from the San Francisco Bay Area. My journey with PKD begins when I was seven years old. My father became increasingly ill with PKD and was told that he […]

My paternal grandmother, Helen, is the first that we know of who had autosomal dominant polycystic kidney disease (ADPKD) in the family. We only figured it out when others in the family started to get diagnosed and we realized that […]

My name is Taylor Karlo, I’m 17 years old and I’m a senior at Olentangy Liberty High School in Powell, Ohio. I am also a volleyball player and I’m committed to the University of Saint Francis to continue my volleyball […]

Rob Herman and daughter Kaley

After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down […]

As many PKD patients know, PKD can often be accompanied by other ailments. Join guest blogger Rob Herman as he shares his and his family’s story about how PKD has impacted their lives: Though it has yet to be officially […]

Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids were no longer kids. I was 13 and wanting my own life, like any know-it-all teenager. My mom was getting “better,” […]