Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
Seattle & Portland Community Meeting
Join us for our upcoming community meeting via video conference!
Sat, May 9, 2026
Lara Macklin & Linda Herman
Details
- Date:
- May 9
- Time:
-
10:00 am - 11:00 am
- Website:
- https://support.pkdcure.org/event/seattle-portland-community-meeting_5-2026/e783167
Venue
Organizer
- Lara Macklin & Linda Herman
- Email seattle@pkdcure.org, portland@pkdcure.org
Join us for our upcoming community meeting via video conference!
Share your journey and hear from others within the PKD community who understand what you are experiencing. We’ll share resources to help you manage living with PKD.
Two opportunities to join our virtual chat – you pick the date that works for you
Saturday, May 9th, 2026
10-11 AM (PT)
Or
Tuesday, May 12, 2026
7-8PM (PT)
Other Events
New York City Community Meeting
VirtualMeet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
COE | Mayo Rochester | 2026 Updates in PKD
VirtualMayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
COE | Columbia | NYC Together for PKD
Sutton Place ParkLace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
PKD Applied Underwriters Invitational Golf Event 2026
Lakewood National Golf ClubJoin us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!