Yes, there are multiple ways PKD patients and families can find support. Through our PKD Communities, people can find opportunities to learn, connect, act, and ensure no one faces PKD alone.
There are three types of communities:
- Local Communities: based on geographical location
- PKD Thrive: for young adults with PKD
- PKD Parents: for parents of children with ADPKD and ARPKD
You can also find support through our PKD Connect Peer Mentors program. PKD Connect Peer Mentors provide resources, guidance, motivation, share their own experiences with PKD, and emotional support to an individual impacted by PKD.
If you need immediate support, call our HOPE Line at (844) 753-4673. Our team is available Monday through Friday from 8 a.m. – 5 p.m. (CT) to answer your questions and direct you to resources.