By joining the ADPKD Registry, you become part of a community dedicated to advancing PKD research and improving patient care. You gain access to the latest information we’re learning in the Registry and valuable resources, like the Personal Impact Calendar and Care Summary, that you can share with your healthcare team to inform your care plan.
Additionally, you may have the opportunity to participate in clinical trials and research studies, potentially accessing cutting-edge treatments and contributing to the development of new therapies.