×

Search Our Site

Newly Diagnosed Find Care Current Treatments
Research Pipeline Peer Review Process Data Resources Kaplan Award PKD Outcomes Consortium Clinical Trials Industry Alliance Fellowships
Patient Handbooks Treating PKD PKD Life Magazine View All Resources
View All Resources
Find Care Find Your Community Find Us On Social Find a Peer Mentor Hope Line International Affiliates
Events
April 26

1:00 pm - 2:00 pm

PKD Thrive Community Meeting
April 29

7:00 pm - 8:15 pm

Twin Cities Community Meeting
See All Events
Walk for PKD
Fundraise Your Way
Give Online

The Registry collects a wide range of information, including demographic data, medical history, PKD symptoms, genetic information (if available), and details about past and current treatments. This information helps researchers gain insights into the disease’s progression, treatment outcomes, and potential risk factors.