U.S. residents of all ages with a diagnosis of autosomal dominant polycystic kidney disease (ADPKD) are invited to join the Registry. Patients under the age of 18 may also join with the assistance (assent) of a parent or legal guardian.
If you do not have an official diagnosis but have a family history and suspect that you have PKD, you’re welcome to join and will need to agree to notify Registry staff of your diagnosis if/when it becomes available.